IIH Weekender

the annual meet–up for idiopathic intracranial hypertension sufferers

 Weekender 2010 Timetable of Events 

Here's the timetable of events for the Weekender that tells you all you need to know about what's happening, where, and when. The timetable's still draft at the moment, and subject to change. As soon as we have a final timetable for the weekend, you'll find it here first! Any questions? Drop us a line using our contact form, and we'll get back to you as soon as we can.

1. Friday 14 May
   1. 8am
   2. 9am
   3. 10am
   4. 11am
   5. 12 noon
   6. 1pm
   7. 2pm
   8. 3pm
   9. 4pm
      • Arrive and check in at the Colonial Hotel
   10. 5pm
       • 5pm – 7pm: Dinner in the Restaurant
   11. 7pm
   12. 7.30pm
       • Time for everyone to unpack and chill out. 
   13. 8pm
   14. 8.30pm
       • You'll find IIH UK's team in the bar!
         
2. Saturday 15 May
   1. 8.30am
      • 8.30am – 9.30am: Breakfast 
   2. 9:30am
      • Those coming in on a day pass need to book in at Reception
   3. 10am
      • 10am – 12.30: IIH UK Annual General Meeting.
   4. 12.30pm
      • 12.30 – 2pm: Buffet Lunch
   5. 2pm
      • 2pm – 2:30pm Guest Speaker. Angela Lansley. ASBAH
      • 2:30 - 4pm Conference fun and games for all
   6. 4pm
   7. 5pm
      • 5pm – 7pm: Dinner in the Restaurant
   8. 7:00pm
   9. 8:00pm
      • Entertainment in the Bar. 
3. Sunday 16 May
   1. 8:30am
      • 8.30 – 10.30am: Breakfast
   2. 10.30am
      • 10.30am – 12.30pm IIH UK Stalls to be manned in Hotel Car Park. 
        
   3. 12:30pm
      • 12.30 – 1.30pm: Lunch is not provided today
   4. 1.30pm
      •  Join us on our Sponsored Walk along the promenade. Meet in hotel reception. Sponsor forms available from info@iih.org.uk
      • IIH UK Stalls to be manned again this afternoon.
      • 
        (You can do whatever you want today, take advantage of the amusements and activities around the Hotel, or go into Blackpool, just whatever you want to do.)
   5. 5pm
      • 5 – 7pm: Dinner
   6. 7pm
   7. 8pm
      • Find your own nights entertainment or join us in the bar.
        
4. Monday 17 May
   1. 8.30am
      • 8.30 – 10.30am: Breakfast
   2. 10am
      • Time for us all to say goodbye and wend our way home.

Please leave the sand and take the happy memories home and we will see you all next year. Have a safe journey.

The IIH "Weekender"

| About IIH UK |

The first annual IIHWeekender, a great successs, was held in Mablethorpe in May 2008, and marked the official launch of IIH UK.

IIH UK was formed by a group of IIH sufferers and supporters who "met" on the internet through the IIH Support forums. At that time it was one of the few places the geographically scattered and relatively small numbers of people diagnosed with IIH could get support from those who understand living with this condition on a daily basis - the sufferers themselves.

When we were first diagnosed and desperate for information on IIH, we could find little information on it. There was no one place where we could find information in a readily accessible format, and for most of us it was pure luck that we stumbled upon the "BIH Forum." Though other organisations provide some information on IIH, there was no national organisation dedicated to IIH in the UK, and no "natural" place to think of to look for information....so we set about and we set one up!

We're all either diagnosed with IIH, or are close to someone who lives with IIH. Most of the team aren't medically trained, but we've all lived with IIH for some time and have a lot of experience in dealing with the issues that surround IIH. Between the members of the IIH UK Officers team, we have the skills needed to effectively run IIH UK, raising awareness, providing a voice for IIH sufferers, and working with other organisations to push the IIH agenda forward, and perhaps most importantly, to work with the medical profession towards improving treatment for those with IIH.

The IIH Weekender's both an opportunity for members of the IIH Support forums and IIH UK to meet up, and the venue for our AGM.

Whether you're already a member of the IIH Support forums, or you've perhaps just stumbled upon our website and you're affected by IIH, we'd be delighted to welcome you to our IIH Weekender. Please explore the website for further details of what we're planning, and if you're interested in being kept informed of future events, please use our contact form to drop us a line and ask to be added to our mailing list.

| About IIH Support |

In 1992, after a five year battle to get a diagnosis, Denise was diagnosed with Benign Intercranial Hypertension, now more commonly called Idiopathic Intracranial Hypertension. She found it very difficult to find any information on this rare condition though.

Denise's daughter Michelle though knew a thing or two about computers, and had a small personal website. Denise wrote out her "BIH story" and asked Michelle if she'd put a section on her story on her website.

Before long though, people began to contact Denise, people like herself, diagnosed with BIH, asking about her story, and it wasn't long before Michelle put a basic web forum on the site so that BIH sufferers could talk to each other. That forum became "IIH Support", and over the years the forum went through a number of changes and technical difficulties, and temporary homes on various websites before eventually getting its own website and expanding further. Today the forum has over 1200 members from across the world, numerous sub-forums, and a chat room. And it all started with one lady's story of her journey with IIH...