the annual meet–up for idiopathic intracranial hypertension sufferers
It was good to be able to put faces to names at last!!! We had a great time and will certainly be looking forward to next year.
Michelle
I can't put into words how it felt after 18 years to actually meet someone else who had the same condition!
Lyn
I enjoyed last year so much I can't wait for this year's bringing my mum, dad and best mate to meet you all!
Elaine
Venue to be decided
The IIH Weekender is a joint project between members of the IIH Support forum and the new UK charity devoted to the neurological condition, Idiopathic Intracranial Hypertension (IIH), IIH UK. It's primarily an opportunity for those with IIH, and those close to someone with IIH to meet up face to face, to have a chat, a laugh, though the Weekenders will also be used to host IIH UK's Annual General Meetings each year.
Although the IIH Weekender is hosted jointly by IIH Support and IIH UK, attendance isn't limited to only forum and IIH UK members (though we hope you might be interested in joining us), anyone with IIH, or affected by IIH is welcome to attend.
Our 3rd Annual Weekender 2010 was a huge success.. This page will be updated once our organisers have had a well earned rest.
The first annual Weekender was held at the Golden Sands Holiday Park in Mablethorpe in May 2008. The weekend was a great success, attended by over 50 people, and almost £500 was raised for IIH UK.
Thanks to everyone who joined us at our 2009 Weekender held at Pontins, Blackpool who made it such a special and memorable weekend. We hope that everyone enjoyed it and will want to join us again next year. I'm sure you'll all agree that a great time was had by all. The highlight of the weekend had to be Jeans Interactive Octopi, what started out as a fun activity soon turned into a serious IIH discussion! I wonder what she'll have in store for us this year?
All in all our 2009 Weekender was a great success. Pontins staff were amazing, it's a shame Pontins closed in October 09 but I'm sure the staff at the Colonial Hotel will make us feel more than welcome when we arrive in May 2010.
Raise funds for IIH Support with Easysearch and Easyfundraising...
2010-5-14 16:00:00 GMT+01:00
IIH UK has its very own Flickr page! Check it out and don't forget to add your photos from the Weekender to our IIHWeekender2010 group!
Check out the timetable page for the just released timetable for the Weekender 2010! Excited about meeting up with us all at the Weekender? We are! We can't wait!
Goodbye to the hastily thrown together website we put together for the first annual Weekender in 2008...and welcome to our brand new website! The IIH UK team will be updating it with the latest news, so check back here for news of our events which will be advertised here first!